Peter Warren, Executive Director of the World Federation in conversation with Carmel Geoghegan, founder of Dementia Ireland Empowering Communities (https://dementiaireland.com/) She advocates for the voice of the person with a diagnosis and their wider family circle, in particular their main care/support person. She builds awareness of what dementia means – starting conversations around getting a diagnosis, supports and services, rural/social isolation, palliative care and now advocating for the choice around assisted dying as well as collaborating with many organisations across research, care groups, businesses and communities. Dr. Helen Rochford-Brennan is an internationally respected Global Dementia Ambassador and a powerful voice for the rights and dignity of people living with dementia. Diagnosed with Alzheimer’s disease in 2012 after a five-year struggle for answers, Helen has transformed her personal experience into an enthusiastic global advocacy movement grounded in human rights and social justice. Helen’s journey in dementia advocacy began as Chair, then Vice-Chair, of the Irish Dementia Working Group. She went on to chair the European Working Group of People with Dementia, representing it on the Board of Alzheimer Europe, where her decade of dedicated service was formally recognised. She currently serves on the boards of Alzheimer Europe Foundation and the Alzheimer Society of Ireland and is a member of Ireland’s National Dementia Strategy Monitoring Committee. Irene Hartigan is a Registered General Nurse with a clinical background in the areas of older adults and stroke. She is currently Senior Lecturer in the School of Nursing and Midwifery, Brookfield Health Sc Complex in Cork, Ireland. Irene is a member of the Clinical Research & Development Group-Department of Medicine for Older People for the Cork Teaching hospitals and the Healthy Ageing Research Group in the School of Nursing & Midwifery. Irene was data collector for the Irish Heart Foundation National Audit of Stroke Services (2008). This was commissioned by the Royal College of Surgeons in Ireland and Trinity College Dublin in association with the Department of Health and Children. This was the first and largest ever study on stroke care in Ireland which shapes Irish stroke services. Also as part of the Irish Hospice Foundation’s Changing Minds: Promoting Excellence in End-of-Life Care for People with Dementia programme, funded by Atlantic Philantrophies, Irene was the guidance lead for the guidance document on the management of hydration and nutrition in palliative care for people with dementia.
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