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Leslie Burke Case

The Leslie Burke Case has aroused considerable interest in the UK and given rise to long legal judgments, most recently from the Appeal Court. It concerns a patient suffering from a degenerative brain condition who fears that at some future time, when he will perhaps be unable to express his wishes, doctors may decide to terminate his artificial nutrition and hydration (ANH). The appeal was brought by the General Medical Council against various points made by the judge in the initial case. The appeal was allowed, thus rejecting a number of declarations made by the judge.

Doctors drop opposition to assisted dying

In June the British Medical Association dropped its opposition to assisted dying. This brings them into line with other medical organisations such as the General Medical Council and the Royal Colleges of Physicians and GPs.

Source: Newsletter RtD-Europe, September 2005.

Lord Joffe’s Bill on Assisted dying for the terminally ill

The House of Lords Report on the Bill for “assisted dying for the terminally ill” is to be debated in the full House in mid-October. In the light of points made in the debate Lord Joffe intends to prepare a redrafted Bill for presentation to the House in the hope that it will be approved and then debated in the House of Commons later in the Session. The VES will again be devoting their resources to helping Lord Joffe in his work.

Source: Newsletter RtD-Europe, September 2005.

Aims and Activities Swedish Society RTVD

The Swedish Society RTVD (Right to Die with Dignity), which was founded in 1974, currently has some 2,500 members. This does not however reflect the fact that a considerably larger number of people sympathise with the aims and work of the society. The RTVD finds the developments in the Netherlands in the field of euthanasia encouraging although in respect of conditions in Sweden there is still a long way to go.

Meeting held on Death With Dignity Bill

As reported in Newsletter No 2, the Death With Dignity Bill of Jeremy Purvis, Liberal Democrat MSP, has been out for consultation by public bodies and committees through the summer. It is expected to be debated in the Scottish Parliament later this year.

NVVE “Do Not Resuscitate Necklace” in MoMA

The Department of Architecture & Design at the Museum of Modern Art (MoMA) in New York has an exhibition with the name SAFE: Design takes on Risk from October 16, 2005 to January 2, 2006.

SAFE presents about 300 objects and prototypes designed in order to protect the body and the mind from dangerous or stressful situations; prevent and respond to emergency; and provide a sense of comfort and safety. It will be the first design exhibition to take place at MoMA’s new building, accompani3d by a catalogue with several essays and plates illustrating the subject.

Cases attracting media attention

The physician who applied terminal sedation (giving sleeping drugs and morphine in “normal” doses) to a terminally ill patient was acquitted by both the courts and the medical disciplinary tribunal; after that both the Prosecution Office and the Health Inspectorate went to appeal. He has now been again acquitted by the Court of Appeal. In its verdict the court explicitly stated that there had not been any proof of a causal connection between the medication and the death of the patient. Now the doctor awaits only the result of the appeal to the medical tribunal, due in December.

Cases Attracting Media Attention

A decision in July this year in the case of Peter K. is seen as helpful. It strengthens a patient’s right to self-determination and clarifies important areas of conflict, for example by stating clearly that feeding by injection without the patient’s consent is illegal. “An end to artificial feeding should not have been refused. Living wills, even expressed only orally, are also binding on care authorities.”

Source: Newsletter RtD-Europe, September 2005.

Change in care law

On June 2nd the National Ethics Committee published a position paper offering a compromise in the present debate. They recommended that the legislature should provide that living wills be binding on doctors and medical staff.

Press Conference

ADMD plans to re-launch the public debate on end-of-life issues by holding a major press conference on 23 September, the occasion of the publication of a book by Catherine Leguay, an official of ADMD: “Respecting life, arranging death – in favour of a Vincent Humbert law”. The book will have a preface by Marie Humbert (and a commentary by Henri Cavaillet).